Vijayawada: The Andhra Pradesh govt has launched ‘Project Punarvika,' an initiative aimed at addressing the challenges faced by children suffering from rare genetic diseases. The announcement was made by minister Nara Lokesh after the widely reported Punarvika case drew national attention.
Punarvika, an 11-month-old infant diagnosed with a life-threatening rare disorder, required a critical injection costing ₹16 crore. The case triggered a large-scale fundraising effort, with people from across the country contributing nearly ₹10 crore through voluntary donations. The remaining ₹6 crore was arranged with the involvement of minister Lokesh. On Saturday, he visited a corporate hospital in Hyderabad, where the treatment was administered, and interacted with the child's family.
The case brought attention to the high cost and limited accessibility of treatment for rare diseases. Following this, the state govt initiated steps to examine broader solutions for similar cases.
On Sunday, Lokesh formally announced ‘Project Punarvika.' The programme is designed to focus on early diagnosis, access to treatment and long-term care for children affected by rare diseases. Officials said the initiative will include financial assistance, improved medical access and institutional support mechanisms.
The govt is also planning to collaborate with international pharmaceutical companies to address the high cost of life-saving drugs. Efforts are underway to engage with the central govt to strengthen policy frameworks related to rare diseases and improve access at a national level.
As part of the initiative, consultations with medical experts, researchers and specialists will be conducted to explore sustainable solutions, including the possibility of domestic manufacturing of high-cost drugs. Authorities indicated that awareness programmes will be launched to inform the public about early detection, available treatments and support systems.
The project also proposes the creation of a structured support system for families of affected children, including medical, logistical and counselling assistance. Steps are being planned to streamline treatment access across hospitals and healthcare institutions.
Officials stated that the initiative aims to address gaps in the current healthcare system related to rare diseases and ensure wider access to treatment for affected patients.
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Venu Lanka is a special correspondent, at The Times of India-Vija...
Read MoreVenu Lanka is a special correspondent, at The Times of India-Vijayawada. He covers developments related to VMC/APCRDA, Janasena, education, health, endowments, and agriculture-related stories. He holds two graduate degrees, one in business management and another in law. He completed his post-graduation in journalism and mass communication, apart from completing short-term courses.
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