Odisha to be 1st state in country to plan chronic kidney disease registry

Bhubaneswar: For the first time in the country, Odisha is planning to launch a chronic kidney disease (CKD) registry by March 31. It will help govt know about the prevalence of CKD and prepare action plans and programmes to tackle kidney disease.

“No state is covered completely by a CKD registry. Earlier, a CKD registry was launched by the Nephrologists Association of India (NAI). But now it is inactive. Very little data is available on the CKD registry portal,” said Susanta Kumar Swain, additional director of health services (non-communicable diseases).




Swain said a state task force of 12 members was formed under the chairmanship of the chief secretary to carry out the CKD registry work. Secondly, a technical sub-committee, also called the state working group, was formed. It has 17 members, including representatives from AIIMS, ICMR, health institutes, the Odisha State Pollution Control Board, the Panchayati Raj and drinking water department, geologists and others, he added.

He said the technical committee formed for the CKD registry is analysing the work. “Starting from the primary health centre (PHC) to medical college level, each healthcare institution will report CKD cases in the registry. Provision for funds has been made to speed up the work. The National Informatics Centre (NIC) is developing the software for the registry,” he added.

“We have data about dialysis patients only, which is around 10% of the total CKD. The remaining 90% are in the early stage of CKD. Out of the total cases, around 60% have diabetes and hypertension. The remaining 40% come under CKD of unknown origin (CKDU). To get all left-out CKD patients, we are carrying out the CKD registry programme to detect and treat patients early,” said Swain.

Official sources said the registry will serve as a baseline for further research studies and analysis on CKD. Altogether 19,888 CKD cases and 4,718 CKD deaths were reported within the last 3 years in Odisha. CKD prevalence is around 14% among the population above 15 years.